BUSY DAYS AND BABY STEPS

I can’t believe August is over. Been way too long since I posted anything, but holy cow life got super busy since the first of August. I started back to work, baby girl turned 12!!! And started 7^th grade!!! all the appointments happened to get everything done before kiddos returned to school.

I recently met with my neuro and got the green light to move from 4 weeks between infusions to 5 weeks! This is huge! I successfully got through three rounds of four weeks apart and after my infusions last week, going forward, we’re going to try five. I am really hoping I still do well. I’ve not lost any strength or experienced any type of weakness the last few months, so praying adding on 7 more days doesn’t have any impact. IF the five weeks goes well for a few rounds then the plan is to drop my dosage amount. So yay!

Other big news is I wore a wig out in public a few weeks ago. I guess it was a successful run. I wore it to my niece’s baby shower, so quite a few people were family and are familiar with my situation. I sent out a head’s up message on the group FB page, just to clear the air and say, hey, I’m doing this, feel free to comment. Have to say I was incredibly nervous. All in all the wig looks fine, it’s just that it doesn’t really look like Me, the me I have been seeing in the mirror every day. It’s got waaaay more hair than I do, which is kind of the point, but it still looks very foreign on my head.

When I walked in the room, I felt serious nerves. Everyone told me it looked lovely and did their best to boost my confidence. My family and extended family are the best. One of my best friends from a previous job didn’t recognize me at first but then once she did, just thought I had cut and lightened my hair, she had no idea it was a wig. That was awesome. =) And I was informed by my sis that I wasn’t the only one there wearing one.

The problem with wearing a wig is that once you have decided to go that route, you just need to own it. In theory it sounds fun! You get nice hair with little work. Change it up if you like. But what I found out is that it is also something you really need to get used to. I felt like I spent the entire 2 hours I was there constantly messing with my hair, keeping stray strands out of my face, making sure it was on straight, adjusting my glasses. Because no matter what they say, glasses and a wig really don’t get along well. By the time I got home, I had a headache starting, similar to the ones you get when a headband is too tight behind your ears. And I couldn’t wait to get the thing off the minute I walked back into the bedroom when I got home. This was a four hour outing. My work days goes from 8-4. I am wondering how I am going to get through eight hours of work when I was starting to suffer at four. Plus the heat this week? Can you imagine having a hairy cap on your head when the heat index is 115 degrees?

So my foray into a life with a wig had it’s ups and downs. I have not worn it since. I don’t regret buying it and I am pretty sure I will try again and attempt to get used to it. Just not right now.

Baby steps.